Dr. Kenneth Peters on the First PFS/PSSD/PAS Summit
Robb (SIDEfxHUB, interviewer); Dr. Kenneth Peters (interviewee)
SIDEfxHUB2026-08-21
Summary (paraphrased)
Interview with Dr. Kenneth Peters, Chair of Urology at Corewell Health William Beaumont University Hospital, organizer of the first medical conference dedicated to PFS, PSSD and PAS together (late April 2026). Peters recounts stopping finasteride prescribing entirely after a single severe patient case roughly a decade ago. A cluster of four young patients presenting within two weeks with near-identical acute-onset genital numbness, anhedonia and brain fog after finasteride, SSRIs, or isotretinoin motivated him to act. His team ran a small case series with corneal confocal microscopy showing nerve damage suggestive of small-fibre neuropathy, then an IRB-approved anonymous online survey drawing over 1,100 responses across all three conditions, with very high reported suicidal ideation. Peters is first author on a SUFU February 2026 conference abstract ("Post-Drug Syndrome: Urgent Need For Clinician Education and Research", Neurourology and Urodynamics Vol. 45, Issue S1), with a further paper submitted and two more in progress; the summit group is writing an extended congress manuscript with a follow-up meeting scheduled. His closing assessment: one cannot sit through the meeting and deny the post-drug syndromes, while being clear the meeting produced far more questions than answers and nothing discussed is a treatment recommendation.
Why it’s in the corpus
Firsthand account of the first PFS/PSSD/PAS medical conference from its organizer — a new clinician voice not previously in the corpus — documenting summit-scale survey data, a small-fibre neuropathy hypothesis, and the emergence of a post-drug-syndrome research consortium.
